Information for Researchers

The SLS Registry is collecting information about Sjögren-Larsson Syndrome (SLS). The SLS Registry will include individuals (adults and minors) who have a diagnosis of SLS. 

Please contact sls@rarelaunch.org or phone (203) 744-0100 and ask for the SLS Community Network if you are interested in using the SLS Registry for a research project, or if you have any questions.